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Showing 1 to 17 of 20 results.
 



Orphan Drugs As A Lifeline for Rare Diseases

Orphan Drugs As A Lifeline for Rare Diseases

Nadiah Hanim Abdul Latif, President, Malaysia Rare Disorders Society | Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist

Spinal Muscular Atrophy: From Carrier Screening To Life After Diagnosis

Spinal Muscular Atrophy: From Carrier Screening To Life After Diagnosis

Dr Sangita Dharshini Terumalay, Consultant Paediatric Neurologist | Yap Sook Yee, Parent and SMA Advocate

Because Feelings Matter #27: “Tak Ada Peluang Langsung Untuk Bernafas”

Because Feelings Matter #27: “Tak Ada Peluang Langsung Untuk Bernafas”

Dr Nurul Izzaty Hassan, Mother and Lecturer

Proposed Constitutional Amendments Could Leave Devastating Impact on Stateless Children

Proposed Constitutional Amendments Could Leave Devastating Impact on Stateless Children

Maalini Ramalo, Director of Social Protection, Development of Human Resources for Rural Areas (DHRRA) Malaysia

Budget 2023: We Need To Invest in Rare Diseases

Budget 2023: We Need To Invest in Rare Diseases

Nadiah Hanim Abdul Latif, President, Malaysian Rare Diseases Society (MRDS) | Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist, University Malaya Medical Centre

Popek Popek Parlimen: An Act of God

Popek Popek Parlimen: An Act of God

Covid-19: Helping Orphaned Children

Covid-19: Helping Orphaned Children

Datin P.H. Wong, Director, Childline Foundation

We’re Not Doing Enough To Help COVID Orphans

We’re Not Doing Enough To Help COVID Orphans

Sharmila Sekaran, Chairperson, Voice of the Children

Orphan Drugs And Rare Diseases

Orphan Drugs And Rare Diseases

Associate Prof Dr Asrul Akmal Shafie, Program Chairman of Discipline of Social & Administrative Pharmacy, Universiti Sains Malaysia

Doctor in the House: Spinal Muscular Atrophy

Doctor in the House: Spinal Muscular Atrophy

Dr George Lee, Consultant Urologist | Edmund Lim, founder and parent of child with spinal muscular atrophy

OrphanCare Foundation turns 10

OrphanCare Foundation turns 10

Noraini Hashim, Trustee, OrphanCare Foundation | Yuzila Yusof, Chief Operating Officer, OrphanCare Foundation

Rare Disease Day 2018

Rare Disease Day 2018

Various

Would You Teach Your Kids To Fight?

Would You Teach Your Kids To Fight?

The Morning Run Crew

The Stigma of Being an Orphan

The Stigma of Being an Orphan

Ng Geok Bee, General Manager, SHELTER | Jia Huai, Ex-Resident

Why Orphanages Are Bad

Why Orphanages Are Bad

Sonya Troller-Renfree, University of Maryland

Adoption and Reintegration

Adoption and Reintegration

 
 




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