Parenting is already hard enough; raising a child with a rare disease? Most of us can’t even begin to imagine the challenges, sacrifices, and heartbreak that the parents go through. In conjunction with Rare Disease Day, we speak to Dr Nurul Izzaty Hassan about her daughter’s diagnosis of neurofibromatosis and her own journey of balancing her daughter and family’s needs with her own mental well-being. 

Every mental health struggle has a story behind it. ‘Because Feelings Matter’ is a series that brings you the stories of people and their mental health issues.

Produced by: Lim Sue Ann

Presented by: Lim Sue Ann

This and more than 60,000 other podcasts in your hand. Download the all new BFM mobile app.

Categories:  managing disease,  wellness

Tags:  the bigger picture,  health and living,  becausefeelingsmatter,  rare disease,  neurofibromatosis,  tumours,  orphan drugs,  mental health,  covid-19,